Saturday, June 18, 2011

A few things to update

Today is a mixed bag of things to write about.

Today, one of the CDH babies that we have included in our "Blogs We Love" is expected to arrive tomorrow (or at a minimum in the next day or so).  Baby Sophia is scheduled to arrive tomorrow via induction and will begin her fight against CDH. 

Its worth noting that I 'met' Sophia's mom on a CDH support site.  So while any CDH baby is of particular interest to me, baby Sophia will be the 1st CDH baby I'll be following since we learned about Payton's own defect.
Baby Sophia is only a few days shy of 40 weeks gestation and her LHR (recall below 0.9 is poor and above 1.4 is great) is only 0.38 (though her liver is down).  Thus, its wondeful that she's gotten as close to 40 weeks as considered safely possible therefore increasing her odds to the maximum.  Still, its amazing how well some of these babies do and its been explained again and again that there are so many variables that they can't measure (or tell) until babies are born. So all too often you see little miracles (hopefully like Sophia) do well and babies who have an excellent prognosis not do well.

Regardless, baby Sophia and her family will begin their fight and I encourage anyone reading this to send a prayer, positive vibe, well wishes towards this family.  Like us, the are not only dealing with the fight against CDH but are also dealing with the juggling of uprooting family and relying so much on others to make it work to provide the best survival possible for baby Sophia.

If you want to follow baby Sophia's journey, please click on the link to the right under "Blogs We Love".

On another note, today is the Test of Metal.  Possibly the biggest (and best known) cross country bike race in BC, taking place in Squamish. 

I've participated in the race 3 times.  Dwayne on the other hand, has participated (except for our 1st year) in the race every year since we've lived in Squamish (and a few times before we moved there during his racing days).  Around 1,000 riders, its a race that's exceptional to watch and even more exceptional (nerve wracking) to race.

Dwayne's best performance at the race has been 5th place (overall, not just in his category) and each year he's held strong (even against the new youngsters who have cropped up).  I know it would have been extra special for him to have raced this year, on the year he turned 40.  In part to prove to himself that 40 isn't old...its just another decade. But also, because fitness is so important to him to keep the increasing years at bay.

Alas, Dwayne and Livy are heading to Vancouver to spend the day with me.  Always a very special treat, and even more of a treat since Dwayne has been out of town for the most part over the last 10 days (and is scheduled to be out of town for many more days through July).  So a rare treat to have the whole family together.

I must sign off so that I can shower and get ready for them (est time of arrival is 50 minutes).

Again, please keep baby Sophia and her family in your thoughts.

1 comment:

Anonymous said...

Hello, Renee
Good hear from you - have a wonderful day and visit.
I read Sophie's June 19, 2011 blog - My heart felt prayers goes out to Sophie and her Mom - she has to go this stressful journey as a single parent - sad.
My love is with you Renee & Payten.
Love,
Auntie Beverley