MRI Day

"There is a lot of damage to your heart" are the words that I remember from the doctor as they explained the MRI results.  These words stand out in my mind. 

There are a few other phrases that also stand out during this conversation "continuing deterioration", "heart transplant candidate", and "likely genetic"...the last being the one that has resulted in more tears than any of the others.

In a nut shell they explained that the MRI showed a lot of scarring on my right ventricle and to their surprise, it also showed scarring on the left ventricle.

Alas, there is one obvious reason for the right ventricle damage, and an obvious reason for the left scaring. 

Right damage: AVRC (a genetic disorder that causes scarring on the heart, typically seen in the right ventricle).

Left damage: Myocarditis, caused by virus.

No obvious reason for damage to both ventricles.

Next step, CT scan...this was completed within two hours of them delivering the results. 

From there, they wanted a heart biopsy.

Also talked about on Friday, MRI day, was the plan to place a de-fibrillator or ICD before I left the hospital.  That no matter the reason for the damage, the ICD was needed to fix or correct when another episode occurred as they don't know whether another episode could be the one that results in sudden death.  Nuff said.

Friday was a long day.