Ok, I'm not going to jinx it by saying it out loud.
Today I was running off my feet getting the equipment and medication we need to have Payton... (ohhh, you thought I was going to type it didn't you).
Payton was up to full feeds this morning and is doing great (just 2 small spit ups - just what you'd expect from a normal baby AND she's in a flat lying bed).
A few more little hiccups Payton Style have followed us but honestly we'd be worried if we had a hiccup free day with things are going so well.
Payton had her IV removed this morning and Radiology came to meet with me in the am. He determined that if Surgery was in agreement they would just remove the misplaced GJ tube rather than trying to replace it. There are downside to this (if Payton doesn't tolerate feeds well she'll be back on IV for a number of weeks to suppliment her feeds till they can replace the tube) but the upside is that we can avoid another proceedure by pulling it out especially since she seems to be rocking her feeds right now.
When I came back from lunch her GJ had been pulled - HURRAY!!! Payton is now down to just her MIC KEY and her monitors. Such a surreal experience to pick her up and only worry about one thing on her body.
Even better is that her MIC KEY is just an ornament at this time (they won't pull it till the 8 week post surgery mark to insure her stomach is fused with her adominal wall to avoid leakage of stomach content into her adomen).
On the downside, Payton has(had) another abcess along her surgical incision. It seems her inside (dissolvable) stitches are infected. Some were poking through and the Pediatrician came over to try to cut them out (apparently this isn't that rare - for people to react like this to the dissolvable stitches). While trying to cut a couple out she worked on the pus pocket a bit and a lot of pus ended up draining out of Payton. They cultured it so we'll know in a couple of days if its an infection we need to worry about (or a good type that will clear now that the would is exposed to air).
We also got the green light to try breastfeeding today. I was too tight for time running around getting things ready for... HA (almost said it).
So, on another note, I'm hoping tomorrow is a lucky day for us. So lucky in fact that I went out and bought a Lotto Max ticket for tomorrows draw.
Payton's Billboard - notice her well earned Bluebird on the far right!
3 comments:
Yeah Payton! Keeping our fingers crossed that she be home soon. Can't wait to see her.
Love Grandma Helen
Excellent news!!
Looking forward to hearing - Payton is going Home!! Yaa
Love you All, Auntie Bev
Yippee! That's great news!
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